Transition readiness is the set of knowledge and skills that young people need in order to manage their health as adults. The Transition Readiness Assessment Questionnaire (also called the TRAQ) is one measure of transition readiness.

We knew that transition readiness goes up as people get older, but we did not have a clear sense of the average transition readiness scores for people of different ages. This made it hard to tell what score we should expect for a particular person at a particular age.

To address this, we used data from IBD Partners. Participants in both IBD Partners and IBD Partners Kids & Teens between the ages of 12 and 21 chose to complete the TRAQ when they did surveys for IBD Partners. We took the results for anyone who had completed the TRAQ and looked at how the scores changed over time.

To read more click here.

Research has shown that patients with chronic diseases have better health outcomes if they are knowledgeable, skilled and confident in managing their disease. In this study, researchers wanted to find out if this is true for patients with IBD. To evaluate this, they delivered a survey called the Patient Activation Measure to 1,486 patients with IBD. Based on this survey, patients are placed on one of four levels. The lowest level is Level 1, "disengaged and overwhelmed." The highest level is Level 4, "maintaining behaviors and pushing further." Follow-up data available for 1082 survey participants (73%) showed that patients with high activation (levels 3 or 4) were more likely than those with low activation (levels 1 or 2) to be in clinical remission 6-12 months after the initial survey assessment.